Today we had our first visit with the cardiologists that travel to the satellite clinic in Lowell. I am so thankful that Arkansas Children's has this satellite clinic here. It is miserable to travel to Little Rock for each appointment.
First, my observations as a parent. I felt really good about my ability to cart around my baby and keep myself together. I had thought the night before "how would I manage with only myself at the appointment?" Then I really wondered, how would I pee? I almost called Charla to ask how one does these things. Eureka! The stroller! The simple things in life are worth celebrating.
He of course was missing a nap to be at the doctor's appointment. I tried to soothe him in the waiting room to sleep in the stroller. And just as I was getting him to dose off, the nurse called his name. Oh well.
We met a new cardiologist today, had an EKG, and an Echo. The Echo showed that Holden's pulmonary arteries are small but the pressures are not at an unsafe level right now. We were given six months until the next echo. They want to do it back at Little Rock while he's sedated so they can be sure to get a good image and more accurate pressures.
So.... things are looking stable. Not where I'd like them to be, but stable. I'm just waiting for the day when the cardiologists say, "He's perfect!"
On another note, I had a patient today tell me that she had just spent time down at Children's because her niece had received a heart transplant. The little girl was 7 weeks old and passed away after the transplant didn't take. I had to control my emotions because I felt tears working their way to the surface. I could see the cardio unit, the waiting room, the recovery rooms, the sink where we washed our hands... I hated and loved that place.
I'm continually reminded of how precious my Holden is. Thank you Jesus for giving him to me. Thank you for helping me grow through our experience at Children's. Thank you for giving me my testimony. How can anyone doubt your awesomeness when they meet our baby!?
No comments:
Post a Comment